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재가 정신장애인 주보호자의 고통경험

Suffering Experience of Primary Caregivers of People with Mental Disabilities in Community Dwellings

정신간호학회지 2020년 29권 3호 p.218 ~ 228
최은정, 조현미, 조은주, 이민경,
소속 상세정보
최은정 ( Choi Eun-Joung ) - Kosin University College of Nursing
조현미 ( Cho Hyun-Mee ) - Kaya University Department of Nursing
조은주 ( Cho Eun-Ju ) - Kosin University College of Nursing
이민경 ( Lee Min-kyung ) - Kosin University University College

Abstract


Purpose: The purpose of this study was to examine the suffering experienced by the primary caregiver of people with mental disabilities in community dwellings to explain the fundamental structure thereof.

Methods: The Giorgi’s phenomenological research methodology was used. Three male subjects and five female subjects participated in this study. The data were collected September-December, 2019 through in-depth individual interviews, and analysis based on the Giorgi’s method.

Results: Four clusters of themes were identified. They are: “Mental disability came as a burden of pain”, “Painful time from caring due to being mentally recoiled and being hurtful”, “My life is broken by illness”, and “Hope discovered in the midst of pain”.

Conclusion: The findings provide deeper understanding and insight into the suffering experienced by primary caregivers for people with mental disabilities in community dwellings. A comprehensive program encompassing psychological and social aspects must be developed to facilitate resolving the problem of the suffering experienced by the primary caregiver for people with mental disabilities.

키워드

정신장애인; 보호자; 고통; 질적연구
Caregivers; Mental disorder; Suffering; Qualitative research

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